Budgeting for Long-Term Care at Home

1) Define the Care You Need 

Daily tasks: bathing, dressing, toileting, mobility, meals, medication reminders, supervision/safety.
Clinical add-ons: occasional RN/PT/OT visits, wound care, injections (usually intermittent).
Household support: laundry, light cleaning, shopping, dishes (when tied to care).

Quick hour guide (start here):

  • Light help: 3–4 hrs/day 
  • Moderate: 6–8 hrs/day 
  • High/safety: 10–12 hrs/day 
  • Continuous supervision: live-in or split 24/7 shifts

2) Pick the Staffing Model 

  1. Agency (hourly aide)
  • Turnkey: they recruit, insure, supervise, run payroll. 
  • Cost: hourly (live-in sometimes priced per day). 
  • Best for: fast start, minimal admin. 
  1. CDPAP (Consumer Directed, Medicaid)
  • You choose/train the worker (often family; not a spouse). 
  • Cost: wages covered once Medicaid plan approves hours. 
  • Best for: trust, language/cultural fit, schedule control. 
  1. Live-in (private pay)
  • One aide lives in the home; priced per day if safe sleep/breaks are possible. 
  • Best for: steady supervision at lower cost than 24/7 hourly.
  1. Adult Day Services
  • Daytime supervision, meals, activities, often transportation. 
  • Best for: socialization + fewer home hours.

3) Build Your Monthly Number (simple worksheet)

  1. Care hours & labor
  • In-home aide: ___ hrs/day × 30 = ___ hrs/mo × $/hr = **$** 
  • Live-in: ___ days × $/day = **$** 
  • CDPAP (Medicaid): $0 for wages (if eligible); note any spend-down: $___
  1. Programs offsetting cost
  • Medicaid MLTC/CDPAP or waivers 
  • Long-Term Care insurance (daily/monthly benefit, elimination period) 
  • VA Aid & Attendance (if eligible)
  1. Non-labor essentials
  • Supplies/DME not covered (incontinence items, gloves, shower chair): $___ 
  • Meds/copays: $___ 
  • Transportation (paratransit, ambulette, rides): $___ 
  • Food/household increase: $___ 
  • Home modifications (grab bars, ramps; amortize if helpful): $___ 
  • Contingency 5–10%: $___ 

Estimated Monthly Total: $___

4) How Medicaid Changes the Math (New York)

  • Eligibility: Meet income/resource rules (single vs. married differ). 
  • Excess income: Qualify via spend-down or, if disabled, a pooled income trust so excess income can pay essentials while keeping eligibility. 
  • Authorizations: A plan nurse sets approved weekly hours. If needs rise (falls, wandering, night care), request reassessment or appeal. 
  • CDPAP vs. Agency: Both depend on authorized hours. CDPAP lets you pick and schedule the worker; the plan still sets the hour cap.

5) Fast Scenarios 

  1. A) Moderate help via agency
  • 6 hrs/day × 30 = 180 hrs/mo × local hourly rate → Labor total 
  • Supplies/DME: add $100–$150 
  • Transport/misc: add $75–$150 
  • Total: Labor + $175–$300
  1. B) Weekday live-in + family weekends
  • Daily live-in rate × 22 days → Labor total 
  • Supplies/meds/transport: $200–$300 
  • Total: Labor + $200–$300
  1. C) Medicaid MLTC + CDPAP
  • Authorized 8 hrs/day (≈240 hrs/mo) → $0 wages out-of-pocket 
  • Pooled trust admin fee (if used): $25–$50 
  • Supplies/transport: $100–$200 
  • Total: $125–$250 (+ any required spend-down)

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Important: This guide is educational and not legal or tax advice. Always consult a NY elder-law attorney and tax professional before transferring assets.